Sean had his 3 month check up today. His blood oxygen seems to have settled at 70%...still in a good range, but on the low side of that range. As we go for these check ups, we continue to discuss with Dr. Lane what the next steps are and when they will take place. With this visit, he has indicated he will consult with his team as to what needs to be done. We talked about the differences in how China would do a process/operation called a Fontan, and what the US would do. Dr. Lane didn't give all the details other than in China they have to stop the heart to do this procedure, and they go up the arteries in such a way as to leave scar tissue. Heart doctors are now seeing people who had this procedure done 10-30 years later and it is a serious problem, one which could lead to death. The US version doesn't stop the heart and does not leave scar tissue.
We are hoping for the best option which is a two ventricle procedure which gives Sean the best outcome. He can still have a Fontan, and it would leave less damage, but still not the optimal procedure. Anyway, the next item to happen would be a heart catheterization to see what it exactly looks like inside his heart. We were not given any date to do this, just that it could be sooner rather than later.
1 comment:
Praying that all the right decisions are made, and that you are at peace with them.
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